So I know I have been holding many of you in suspense the
last week and figured I’d stay up to post this so you can all wake up a
little less worried :).
Mom and I spent
literally the entire afternoon at Penn, the downside to having the best
doctor on the planet is waiting for him for unreal amounts of time. We
always try to remember that three years ago, he spent an insane amount
of time with us, which set him behind the rest of the day. So when we
are late, it’s because someone else needed him more than I do right now.
For the most part, I was given a clean bill of health three years out
:). A small nodule on my right lung did show up on my MRI which I need
to have a CT follow up scan for but according to him it is likely
inflammation from allergies or aspiration and nothing to be concerned
about, just taking an abundance of caution. That will be on the 7th of
September. If that is okay, I see my oncologist for another MRI in March
followed by Dr. Weinstein in August of next year.
In
other news, my tooth site is still healing, although painfully slowly. I
see my periodontist next week for a little more TLC/laser treatments to
help it along. I am back in physical therapy to get my jaw/neck back in
order after a decline in my speech, swallowing and pain after my tooth
extraction. It’s definitely nice to feel like I’m getting back to my new
“old” self. Once physically I’m stronger we will start to trial new
medicines again so hopefully, as Dr. Weinstein said today “after the
wedding next comes babies!” He also mentioned a good deal about
possibilities for using my story as motivation for others through my
job, a book, or becoming a motivational speaker. If anyone is interested
in managing my social calendar to make any of that happen your welcome
to since God knows I don’t have time right now!
Aside
from the medical junk that has unfortunately become the normal, life is
flying by with less than six weeks till the wedding and lots of plans
to stay on top of! Fingers crossed I pass the CT with flying colors and
we can move full steam ahead to enjoy our special day and honeymoon
worry free! Get those RSVPs in :)!
Thank you all
for sticking with us this far. I know some updates are more exciting
than others and at times it can be a tough reality to face. Part of my
challenge now is figuring out how to use my journey to help others as I
live out this hopefully long life one day at a time. I will post a quick
one after to CT to put all the curious minds at ease! :)
Lots of love and thanks for the prayers and positive thoughts,
Devin
