Devin and Owen

Devin and Owen

Monday, December 26, 2016

Christmas 2016

Merry Christmas Everyone!!

I thought today might be a good time to update you all on life lately and what my plan is for after the holidays.

Thanksgiving was a great day, with more food than I ever could have hoped to be able to eat and a whole lot of family time. All in all it was everything I could have wanted.

About two weekends ago we went into Philly to spend the day with Siobhan and Dan, get some good food and do christmassy things around the city. It was a crowded day and I took my first ever uber ride! But we got to see the Macy's Christmas light show and wander around some nice shops with hot cocoa. It was a really nice was to kick off Christmas with everyone and be in Philly for something other than the doctor!

Last weekend I had a perfect visit with my college friend and roommate Courtney who I see about twice a year now since she moved south. There is never enough time for us to spend together, but we make the most of what we have. We spent the weekend catching up and doing a whole lot of Christmas! Her family stole her away to soon 😉 but a little time is surely better than none. It was an amazing Christmas present!

There isn't too much new on the health front. I continue with my speech and physical therapies in hope of returning to work next month sometime. In order for that to happen there is still one big barrier to tackle and that is pain management. I finally saw the pain management specialist last week and we are confident that they will be a good fit for my needs at this point. The doctor had a plan ready after just a short conversation and prescribed some new medications that will hopefully lessen my need for heavier pain medications to eat and speak for long periods of time. Unfortunately, my insurance company wasn't to keen on covering said medications, so once the holidays are over we will find out if the doctors authorization worked or if we will have to create a new plan. Once I know that my pain regimen is effective, I will feel much more confident about setting a solid return to work date. So the medical update is a brief one, but I see that as a huge improvement on life overall :)!

I got to spend my Christmas surrounded by two wonderful families, each with very different traditions and ways to celebrate the day together. Sitting back during both of these I couldn't help but realize that I think I finally understand the the happiness that Christmas is suppose to bring. Last year, as we all know, I was in no place to celebrate the holidays and, quite frankly, I had zero Christmas spirit to help me care to try and enjoy it. I went through the motions, bought gifts, spent time with family, watched the usual favorite films, and tried to do what I knew would make my loved ones happy, but there is something about severe oral pain, fatigue, and an inability to speak, sing carols, and drink more than bland soup broth that can really put a damper on someone's Christmas. Thankfully though, we made it through and were given the gifts of wonderful family time and a whole lot of love despite the challenges. In the past, focusing on the piles of gifts always had a way of taking over. I hope to never lose this new perspective that Christmas is truly a time to be aware and grateful for the blessings life has given us, while trying to pay forward the love and good fortune to those who may be unable to experience them because of difficult circumstances, just as so many of you did for me this time last year. I see today that I am enormously blessed, by ever improving health, an amazing and supportive family, my patient and giving fiancé and the family he has allowed me to join, and my faithful friends who have stood by my side while at my worst. While there are still trials and hurdles to overcome, I know that they will pass and life will continue to move forward, hopefully in a positive way. I have learned that we have a lot of control over the direction our lives take, even when we feel everything is completely out of our hands. It is the way we choose to face challenges such as poor health, difficult jobs, or trying relationships, that can shape what our lives evolve into year after year. Christmas is a good time to step back and reflect on whether or not The Who you have been through the past year is someone you would be proud to remember in the years to come. And it is also a time to plan for change if the answer to that question happens to be that you realize you can and should do better. I am proud of the way I have confronted cancer and all that has been thrown at me, but I also know that the journey is far from over and it is now time to decide what I want my life to become as a result of this new path that has been laid out for me. I'm hopeful that the new year will not only bring clarity and renewed strength, but also continued good health for myself and my loved ones and a whole lot of joy in moving forward as well as faith in my journey ahead.

Thank you all for caring and being such a strong part of my progress this year. Please keep the prayers coming that I am able to solve these last few problems in the new year to get back to a purposeful life!

Merry Christmas to all of you!!! And a happy and blessed New Year!
With all my love and gratitude,
Devin